Caring for People with A-T
Since A-T is a rare disease, it can be difficult to find comprehensive information on how to best manage an A-T patient's health. The A-T Children's Project has been funding specialized clinical evaluations for A-T since 1995, and much of the information found here is a result of the hundreds of families who have been a part of this effort.
Download a copy of the 16 pages information handbook.
For more details: www.atcp.org/Caring
"Hard Life"
Music by Brad Paisley and lyrics by Joe Kindregan, who has A-T
You'll find below some interesting links that will help you understand this disorder better. You'll find some information on organizations helping families in the USA and UK (sorry could not find one in Canada). You will also found personal and unique sites of individuals with A-T and some videos that will touch your heart.
Links
Click on the links below to read other inspired stories:
- Wikipedia: Ataxia-Telangiectasia
- A-T Children's Project
- Action for A-T
- A-T Society (UK)
- The Slack Family
- Derek's Dreams
- Hope for Brian
- Blog: Ataxia-Telangiectasia
- Association pour la recherche sur l'A-T (Ataxie Télangiectasie) (Europe)
- Rare Disease Foundation
- A-T Children's Project
- Action for A-T
- A-T Society (UK)
- The Slack Family
- Derek's Dreams
- Hope for Brian
- Blog: Ataxia-Telangiectasia
- Association pour la recherche sur l'A-T (Ataxie Télangiectasie) (Europe)
- Rare Disease Foundation
Videos
Click on the links below to see other inspired stories: